I have had telangiectasias since I was two years old. I am now fourteen. In a way it has been bad because I use to get picked on when I was in primary school. It does not really stop me from doing anything.
The problem is that it seems to have lots of side effects. For example, a week ago I started getting pains in my chest. My doctor checked it out and she does not know what caused it so now I might have to have some scans.
All that you need to know is we all have problems, but you should not have to deal with them by yourself. If I had a choice whether or not to have telangiectasias or not I would not want them and I do not think anyone else would either. Make-up does help cover them up sometimes, but you always have to buy the expensive stuff.
Hope you have enjoyed my story. It is not very good because I still do not really understand at such a young age, and I have had other really big problems in my life, but whoever you are and wherever you are, you are never alone.
Email: Withheld by request
Story posted 07-06-04 SLE
Story Artist: Ione Bridgman
Story Editor: Judith Devlin
ISN Artist Ione Bridgman created original artwork to illustrate this page. She is 90 years old, and lives in New Zealand. Her lovely paintings illustrate many of our pages and the covers of our Voices of Scleroderma Book Series.
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