I found her again, still happy, still wonderful and full of life. Only this time around she has an awful disease, CREST. She is newly diagnosed and only learned of it a year ago. One of her first doctors said she had five years to live. Why would he say such a thing? I have read story after story of people having CREST for decades.
It killed her son's way of life and did not do me much good either, yet this woman fights on and tells us not to worry. But when she is by herself she is so alone. She needs someone to talk to that is fighting her fight.
Believe me, this girl has given her all to this world and asked for nothing back. I am lucky and blessed to have known her.
If you could help please write her and maybe give her some more ammo to fight on. Her email is below. Thank all of you so much!
Keena's friend and now yours,
Email: [email protected]
Story edited 04-21-09 JTD
Story posted 06-15-09 SLE
Story Artist: Shelley Ensz
Story Editor: Judith Thompson Devlin
CREST Syndrome Stories
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Symptoms of Systemic Scleroderma
Types of Scleroderma
What is Scleroderma?
SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.