I found out about my scleroderma on November 1, 1971 at four in the afternoon.
Difficulty swallowing was the thing which got my doctor's attention. I was very fortunate because my doctor had a friend in medical school whose wife had scleroderma, so he saw right off that it was scleroderma.
Life with scleroderma is not easy but can in fact be handled by simply listening to the doctors.
Right now my right hip and knee are going stiff. I just got out of the hospital after five days with pneumonia. I have had lots of trips to the hospital and I now walk with a cane.
After all these years, I believe I have handled scleroderma very well. At the moment I am on several medications for the effects that the scleroderma has had on me. I do believe in keeping doctor's appointments regularly.
Heart doctors and gynecologists have all closed the book on me, as anything I might get in these parts of my body I am told I would not live through the treatment. This includes cancers; nothing would be done for me for that.
I hope this lets you see how I am handling this thing. Thank you for listening.
New email address needed 7-13-03 SLE
Old Email Prefix: ssknox
Story Posted 11-30-99
Story edited 7-13-03 SLE
Story Artist: Shelley Ensz
Difficulty Swallowing (dysphagia)
High Blood Pressure
United Way of Central New Mexico
United Way of Snohomish County
See ISN News for recent donors, including Juliet Youkhana; and donations in loving memory of Jim Miller and Arlene Marie Petulla.
Click Here to Donate or Shop
or click on the floating green DONATE sclero.org button.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: