Hello, I am a twenty-nine-year-old girl who was diagnosed with Raynaud's about ten years ago. My symptoms include general hypersensitivity to cold, with white fingers that turn insensitive if they are exposed to the cold for a while, but also if, for example while taking a shower, I accidentally let hot water touch my feet, my toes become white, cold, and insensitive.
I was explained by a rheumatologist that high temperatures could also provoke symptoms. I often become cold, and when this happens I usually feel sleepy and clumsy.
I should confess that I have not been regularly checked. About two years ago I was given red fruit and vitamin pills without a good result.
About the stories I read, perhaps mine is less difficult, but I assure you that it can be highly disabling, especially for someone who, like me, works with a computer all the time, so much so that I have had to reconsider my job and career.
I would like to ask a question (if someone could please give me an answer); What's the difference between the illness and Raynaud Syndrome, and what actions should I take since I was diagnosed with the latter? Also, is there any economic help or something of the sort (I am not very familiar with this reality), that could help those that cannot develop themselves normally due to this illness?
Simo S. Email: [email protected] Story edited 02-08-09 JTD Story posted 03-10-09 SLE Story Artist: Shelley Ensz Story Translator: Alba León Story Editor: Judith Thompson Devlin |
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Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
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