SCLERO.ORG is retiring 4-24-2021. Thank you for the memories! You'll still find us in the Wayback Machine, and we'll carry your stories in our hearts forever.
Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Sofia: Systemic Scleroderma


Pink Lillies by Sherrill Knaggs, ISN Artist Hello everyone. I would like to share with you that eight months ago I was diagnosed with systemic scleroderma. I am thirty-five years old and I have two little sons, one is five, the other one is two. I shouldn't even say how distressed and suffering we are because of the news.

I went to a doctor who treats immune system diseases and he is giving me a treatment of antioxidants and other natural medicine. I take medical tests every three months and my illness hasn't grown, it is stationary. I feel very energetic, and in a very good mood.

I gave interviews in Argentinean television so that those who suffer from it do not lose hope. There IS a medicine that allows you to have a very good quality of life.

The doctor's name is Ernesto Crescenti, he is Argentinean, and his office is in Córdoba and Gallo.

I wish the best to all of you, practice pilates, don't eat greasy foods, and overall, being emotionally stable helps the treatment a lot.

We are in this fight, let's not put our arms down, let's not lose our smile. Let's not give up hope that there will be a definitive cure. Let's achieve our dreams, because we are only sick, not dead.

I wish you the best, I hug you knowing what you are going through. Be strong, fighting makes us stronger.

To Contact the Author

Email: [email protected]
Story translated 04-22-06 AL
Story edited 04-22-06 JTD
Story posted 06-16-06 SLE

ISN Senior Artist: Sherrill Knaggs
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
Systemic Scleroderma

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Translator and Editor: Alba León

Alba LeonAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Soledad: Diffuse Scleroderma with CREST

SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.

International Scleroderma Network (ISN)