I was diagnosed with scleroderma three years ago. I am having a hard time understanding my illness, and its symptoms. I am in a stage of exploration and self-discovery. I have tried to find different therapies and sometimes I feel fine, but then I have a crisis, I fall, pick myself up again, time and time again.
I am thirty-four, with two children, one is seventeen and the other eleven. I have a lot to fight for, I am mother and father to them.
I would like to find someone to talk to, that understands what is happening to me without pitying me, because that's what I see in people's eyes, pity, perhaps sometimes I even see it in myself.
Cheers and good luck.
Email: csoledad [email protected]
Story edited 06-13-2010 JTD
Story posted 07-01-2010 SLE
Story Artist: Shelley Ensz
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
(Español/Spanish) Soledad: Paciente con Esclerodermia Difusa con CREST
Acerca de la Esclerodermia
CREST Syndrome Stories
Diffuse Scleroderma Stories
Emotional Adjustment: Coping
Emotional Adjustment Stories
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Symptoms of Systemic Scleroderma
Types of Scleroderma
What is Scleroderma?
ISN Translator and Editor: Alba León
Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
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