My name is Star and I want to share my story about my husband. I am forty-three and I lost my husband on October 7, 2001. He had scleroderma for two years.
We were married for twenty-four years and have three sons ages twentyone, twenty-two, and twenty-four. He was very strong man, a loving husband, and father.
Frankie was my life, whom I love and will never forget, but he gave me strength to continue, and if I can help someone like you and give you strength to go on with life, then I know he's smiling on me.
I want to thank all of you for being there for me and my three sons, Charles, Jay and David. I do not think I could have understood what scleroderma really was without you.
After my husband passed away I got on the internet and this web site helped me to really understand why my husband got this illness. Even his doctor could not explain it to me as well as this web site.
My husband lived two years with this illness and I miss him every day. You have no idea how hard the two years were that I went through with him. But you have all helped me to deal with this and I thank you all so very much. May god be with you.
Keep up the wonderful work you are doing. I hope there is a cure one day so no one has to suffer like my Frank. My love and prayers go out to all of you. Thank you all.
Email: [email protected]
Email address verified 7-14-03
Story posted 2-18-02
Story edited 7-14-03 SLE
Story edited VH1: JTD 8-21-03
Story update edited 01-14-05 JTD
Story update posted 01-17-05 SLE
Story Artist: Shelley Ensz
Story Editor V1: Judith Devlin
What is Scleroderma?
Scleroderma Survivor Stories
The story on this page is
featured in the book:
Voices of Scleroderma Volume 1
The story on this page is featured in the top-notch Voices of Scleroderma Volume 1 which features articles by top scleroderma experts, including Dr. Joseph Korn, as well as 100 true patient and caregiver stories from this website! The book delivers excellent information and support for scleroderma patients and caregivers. It's a great way to inform family and friends about scleroderma, too!
SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.