In the year 2000, I finally received a diagnosis of localized morphea scleroderma.
I have bruise-like patches all over the trunk of my body. The spots grow under my breast, on my side, stomach, back, and part of my arm. It has confined itself to the left side of my body.
My doctor, at the time, told me not to worry, but at the same time said there is no cure. I think it is affecting my joints. I feel like I have arthritis at twenty five years old.
New email address needed 08-06-09 SLE
Old Email Prefix: Sgoens312
Story posted 10-28-01
Story edited VH1: JTD 9-8-03
Story Artist: Shelley Ensz
Story Editor V1: Judith Devlin
Voices of Scleroderma Volume 1
The story on this page is featured in the top-notch Voices of Scleroderma Volume 1 which features articles by top scleroderma experts, including Dr. Joseph Korn, as well as 100 true patient and caregiver stories from this website! The book delivers excellent information and support for scleroderma patients and caregivers. It's a great way to inform family and friends about scleroderma, too!
We have the world's best supporters! See ISN News.
SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to: