About four years ago I started having joint pain, fatigue and a low grade fever. I went to several doctors who all said I probably had a virus. These symptoms would come and go. I kept trying to get answer but most of the doctors made me feel as if I was making things up.
Then I started to notice a spot that felt like a pimple under the skin just above my left breast. I did all the things to try to get this "pimple" to go away (which of course, did not work). So I went to my gynecologist to have her take a look at it.
By this time the spot had grown in size and had not changed color. She sent me to have a sonogram done on it. Then she told me that it was just a large blood vessel and there was nothing to worry about.
Well, that was two years ago. Needless to say, the spot is now larger and turned my skin color. But my fatigue, joint pain and fever have gone .Thank goodness! So, I just recently went to the dermatologist who did a biospy.The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information.
This is what brought me to this great site! I am very nervous that the symptoms I had four years ago is connected to this.
I am thirty two and have three children and I am so scared things could get much worse. I go in a few days to see the doctor to discuss this further with her. I would like to hear from anyone that has been or is in my situation as my journey (I feel) is just beginning! Bless you!
Tessa Email: [email protected] Story edited 10-17-09 JTD Story posted 10-20-09 SLE Story Artist: Shelley Ensz Story Editor: Judith Thompson Devlin |
LINKS Difficult Diagnosis Difficult Diagnosis Stories Morphea Scleroderma Morphea Stories Medical: Diseases and Symptoms Scleroderma Experts (Worldwide) Sclero Forums Symptoms of Systemic Scleroderma Types of Scleroderma What is Scleroderma? |
Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
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