I have systemic scleroderma. About twelve years ago and prior to being diagnosed, I was diagnosed with interstitial cystitis (IC). Interstitial cystitis is a chronic inflammation condition of the bladder that can destroy the lining of the bladder and cause it to harden and shrink. The symptoms are frequent urination, pain, and pressure. Unlike common cystitis, interstitial cystitis does not respond to conventional antibiotic therapy, and it is probably not caused by infection. There is no cure and after many different treatments, my bladder was removed in 1992.
Two to three years later, I developed muscle and joint pain, hypertension , Hashimoto's thyroiditis , arm numbness, and confusion. After seeing many doctors, including rheumatologists, I was diagnosed with systemic scleroderma. Therefore, I am interested in the relationship between interstitial cystitis and scleroderma.
Thanks for your support.
New email address needed 01-24-05 SLE
Old Email Prefix: trudy2t
Story posted 11-28-00
Story edited VH1: JTD 9-9-03
Story Artist: Shelley Ensz
Story Editor V1: Judith Devlin
Voices of Scleroderma Volume 1
What is Scleroderma?
PDF Brochure: What is Scleroderma?
The story on this page is featured in the top-notch Voices of Scleroderma Volume 1 which features articles by top scleroderma experts, including Dr. Joseph Korn, as well as 100 true patient and caregiver stories from this website! The book delivers excellent information and support for scleroderma patients and caregivers. It's a great way to inform family and friends about scleroderma, too!
United Way of Central New Mexico
United Way of Snohomish County
See ISN News for recent donors, including Juliet Youkhana; and donations in loving memory of Jim Miller and Arlene Marie Petulla.
Click Here to Donate or Shop
or click on the floating green DONATE sclero.org button.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: