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Tui: Limited Systemic Scleroderma

New Zealand

I have just completed my third endoscopy and argon laser treatment for watermelon stomach, one of my several scleroderma symptoms. I find the aftermath painful and cannot eat normal meals for seven days afterwards, yet it implies on this web site the treatment is not painful. Do others find it painful?

I am wondering whether such treatments will be ongoing? My next one is due in twelve weeks. Will I likely reach a point where no further treatment is necessary?

My Limited scleroderma seems to be reasonably active.

I have a second question. I have a history of neuromuscular weakness which predates my scleroderma diagnosis. It is associated with extreme thirst for which I am on a potassium supplement.

Does anyone else have this combination of symptoms - my scleroderma ones, besides watermelon stomach are "sausage fingers", calcium nodules around the knuckles, Raynaud's, white "freckles" on my arms, a large patch of morphea on my back, and areas of darkened skin. And fatigue, which is admittedly much better since the bleeding was checked in my stomach and my blood count greatly improved.

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Email:Withheld by Request
Story edited 04-06-06 JTD
Story posted 06-09-06 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Thompson Devlin
Limited Scleroderma
Morphea Stories
Raynaud's Stories
Watermelon Stomach

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

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