Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Tutter H: Lichen Sclerosus

Since this is an autoimmune disorder, I have no idea how long this relief will last or if it will completely go away.

Yellow Rose for Tutter, by Sherrill Knaggs, ISN ArtistLichen sclerosus is a painful skin condition that typically affects the vulva (or penis) and anus. It sometimes occurs in overlap with scleroderma. It is an autoimmune disorder. It is not contagious, and it is not sexually transmitted.

I am sixty-two years old. I have had eleven breakouts throughout the vaginal and anal areas of my body, as well as my arms and on my back.

I am hypothryoid, and so are several members of my immediate family. I have many allergies to foods such as soy products and other items such as feathers, metals, etc. Fortunately, other than my arms, which were treated by X-ray at age sixteen, my lichen sclerosus breakouts elsewhere were never that severe (mostly just itching), until about five years after I had my only child at age thirty-five. After that, the eruptions became very severe, swollen and skin-darkening.

After consulting many gynecologists and dermatologists, I was finally diagnosed with lichen sclerosus at age fifty-eight. The latest dermatologist suggested that I take one or two 800 mg folic acid tablets per day, besides the usual steroid cream prescription. Since I had not heard this before, I tried the folic acid tablet without using the steroid cream. Surprisingly, the eruptions and itching have subsided—not totally, but to the point of a welcome relief.

Since this is an autoimmune disorder, I have no idea how long this relief will last or if it will completely go away. Most new things just turn into a new allergy. But I just thought I would share. Best wishes to all of you who are suffering so much more than I have. I know how much more severe this could be and I actually consider myself fortunate.

To Contact the Author

Tutter H.
New email address needed 08-01-06 SLE
Old Email Prefix: hehurst
Story edited 10-21-05 JTD
Story posted 10-21-05 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
Lichen Sclerosus

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Tyler: Scleroderma, CREST Syndrome

SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected]. Disclaimer. Privacy Policy.