Hi my name is Tyler and I am fifteen years old. When I was thirteen I was diagnosed with scleroderma. It has changed my life. It makes me feel like I am not a kid anymore because I cannot do what I used to do.
I don't get to play in the snow or any thing like that. I always have to be warm and I cannot go out side during lunch when it is cold. It is really bad. I am only fifteen so I do not know what to do right now.
We are not the richest people so it is really hard on my mom to buy all the medicines and things I need. It is really stressful on her.
I don't even know very much about my disease, so it is really confusing for me. The doctors say it is very rare for people my age to have the systemic form of scleroderma.
Story edited 09-23-06 JTD
Story posted 10-26-06 SLE
ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
Types of Scleroderma
What is Scleroderma?
SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.