Hi my name is Tyler and I am fifteen years old. When I was thirteen I was diagnosed with scleroderma. It has changed my life. It makes me feel like I am not a kid anymore because I cannot do what I used to do.
I don't get to play in the snow or any thing like that. I always have to be warm and I cannot go out side during lunch when it is cold. It is really bad. I am only fifteen so I do not know what to do right now.
We are not the richest people so it is really hard on my mom to buy all the medicines and things I need. It is really stressful on her.
I don't even know very much about my disease, so it is really confusing for me. The doctors say it is very rare for people my age to have the systemic form of scleroderma.
Story edited 09-23-06 JTD
Story posted 10-26-06 SLE
ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
Types of Scleroderma
What is Scleroderma?
United Way of Central New Mexico
United Way of Snohomish County
See ISN News for recent donors, including Pam Hop, Margaret Roof, Winifred Schillberg, Arnold Slotkin, and Juliet Youkhana. Plus donations in honor of Kim Thwaits, and in loving memory of Marta Marx, Jim Miller, and Arlene Marie Petulla.
Click Here to Donate or Shop
or click on the floating green DONATE sclero.org button.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: