I am a thirty-year-old woman, and I have been suffering for three years from Sjogren's Syndrome with highly positive anti-SSA antibodies. I am being treated with cortisone, and about a year ago a monoclonal immunoglobulin peak appeared in my blood. I continue to take the same cortisone treatment although recently, after a stressful episode, my symptoms worsened, with pain in my right parotid gland. This resolved after the dose of steroid was increased.
I am very worried about my condition. I am a member of our local association, but this has not been a great help. I would like to get in contact with other colleagues (in fact, I am a doctor) who could help me and, above all, share with me their experiences.
I would also like to have information about the possibility of getting pregnant, and about the likelihood of developing a malignancy.
Email: [email protected]
Story posted 1-30-02
Story edited 3-30-02
Story translation by Kevin Howell posted 6-18-02
Story edited VH1: JTD 9-9-03
Story Artist: Shelley Ensz
Story Editor V1: Judith Devlin
Pregnancy and Scleroderma
(Italiano) Veronica: La Sindrome di Sjögren
(Italiano) Sclerodermia dalla A alla Z
(Italiano) La Sindrome di Sjogren
(English) Sjögren's Syndrome
Voices of Scleroderma Volume 1
The story on this page is featured in the top-notch Voices of Scleroderma Volume 1 which features articles by top scleroderma experts, including Dr. Joseph Korn, as well as 100 true patient and caregiver stories from this website! The book delivers excellent information and support for scleroderma patients and caregivers. It's a great way to inform family and friends about scleroderma, too!
SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses.
We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: