I am Yally, mother to a lovely girl called MC, who is seven years old. A year ago she was diagnosed with linear morphea. She has a spot on her left leg, that almost covers it completely.
Now she takes colchimedio 0.5 one pill a day and Daivonex cream every night, as well as Methotrexate two pills every eight days on Sundays.
Physically she is a healthy girl. My concern has always been taking the drugs for an unlimited amount of time, what side effects it can have. She gets checked periodically, and up to now everything is okay, thank God.
Thank you for this web site and I would like to be in touch with you, and to know more about eating habits, exercise and in general the normal life my little girl can lead.
Yally Email: [email protected] Story edited 10-09-06 JTD Story posted 11-15-06 SLE ISN Senior Artist: Sherrill Knaggs Story Translator: Alba León Story Editor: Judith Thompson Devlin |
LINKS Caregiver Stories Juvenile Scleroderma Linear Scleroderma Morphea Scleroderma Morphea Stories Types of Scleroderma What is Scleroderma? |
Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
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