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SCLERO.ORG is retiring 4-24-2021. Thank you for the memories! You'll still find us in the Wayback Machine, and we'll carry your stories in our hearts forever.
Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Scleroderma Story Collections

SCLERO.ORG Stories. Over 1,000 patient, caregiver and survivor stories from around the world, including stories in many languages, including French, Italian, Romanian, and Spanish. Read our Stories. Stories on other web sites include:

Blog: Jackie Sue We Love You. Jackie passed away on November 30th, 2011. Jackie had GVHD. The blog covered her progress after her mini-allo MUD transplant. Her transplant was the first one to be performed by the Mayo Clinic. Bruce and Jackie. (Also see Graft vs. Host Disease, GVHD)

Blog: Living With Hope. I have scleroderma, avascular necrosis, cervical spinal disc disease, pulmonary fibrosis, pulmonary aterial hypertension, and several other things that go with these diseases. I was diagnosed in 1991. I am 56. Brian, my husband was diagnosed three years ago with early onset Alzheimer's. He is 57. Dee Dee Hunt.

Kealy's Journey with Linear Scleroderma from Mom's Perspective. Terry Bullard.

Listen and Laugh. A humorous blog from a senior citizen with scleroderma. Natasha Lubin.

Sharon's Stem Cell Transplant Blog, "Spreading our wings in Windy City". Sharon and Craig.

Please see Scleroderma Sites to Surf! for more Scleroderma stories.

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SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.

International Scleroderma Network (ISN)