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Web Site Descriptions I-R

International Scleroderma Network
Juvenile Scleroderma
Psychosocial Aspects of SSc
Pulmonary Hypertension Registry
The Rombergs Connection

International Scleroderma Network (ISN) by Shelley Ensz

The International Scleroderma Network's dynamic team of volunteers empower our worldwide scleroderma community by providing medical, support and public awareness information via our SCLERO.ORG website and print publications in many languages.

Webmaster is Shelley Ensz, who is Founder and President of the nonprofit International Scleroderma Network, the SCLERO.ORG website, the Scleroderma Webmaster's Association, and EdinaWebDesign.com. Emails answered daily, or as health permits.

Juvenile Scleroderma by ISN

Juvenile Scleroderma features information on medical information, experts, book, and a listing of resources.

Webmaster is Shelley Ensz, a patient, who is founder and president of the International Scleroderma Network, SCLERO.ORG, and the Scleroderma Webmaster's Association. This page updated monthly and emails answered daily, or as health permits.

Psychosocial Aspects of Systemic Sclerosis by Dr. Vanessa Malcarne

Project PASS: Psychosocial Aspects of Systemic Sclerosis concerns research under the direction of Dr. Vanessa Malcarne, Associate Professor in the department of Psychology at San Diego State University. The goals of Project PASS are to develop a psychosocial profile of individuals with systemic sclerosis, and their spouses as well to identify important medical and psychosocial predictors of both disability and psychosocial adjustment.

Webmaster is Dr. Vanessa Malcarne who is Professor of the Department of Psychology at San Diego State University.

Pulmonary Hypertension Registry of Scleroderma by SCTC

pharosPulmonary Hypertension Registry of Scleroderma (PHAROS) is a multicenter study of systemic scleroderma (systemic sclerosis) patients in the United States who are at high risk for developing pulmonary hypertension as well as those with newly diagnosed with pulmonary hypertension, by members of the Scleroderma Clinical Trial Consortium (SCTC). ISN.

The Rombergs Connection by Marilyn Neal

The Rombergs Connection is an international support group for people whose lives are affected by Rombergs Syndrome, sometimes known as Localized Scleroderma.

Webmaster is Marilyn Neal. Site is updated as changes are required. Personal stories & photos being added constantly. Emails are always welcomed.

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Many thanks to our recent donors, Custominkfundraising, Nancy Wyzinski, and Ruben Garcia! See ISN News for more donors. Click Here to Donate.

 

TOLL FREE HOTLINE, U.S. and Canada: 1-800-564-7099
Ask for our Free Info Packet by email or postal mail!

SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses.

We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected] to request our Welcome email, report bad links, or update page content. Disclaimer. Privacy Policy.
 

The most important thing in the world to know about scleroderma is sclero.org!