Eye Involvement Patient and Caregiver Stories

ISN Guide to Eye Involvement: Dr. Liz Irvin

Dr. Liz IrvinHello, I am Dr. Liz Irvin, your ISN Guide to Eye Involvement. In addition to helping Dr. C. Stephen Foster develop resources for this section of the ISN website, I am happy to try to respond to questions that you may have or to redirect you to resources that may be helpful. Email [email protected].

Here are listings of eye involvement patient and caregiver stories on this website. Each story is also linked to appropriate medical pages on this site. (Also see Scleroderma Eye Involvement, What is Scleroderma?, Types of Scleroderma, Systemic Sclerosis and Sjogren's Syndrome)

Debs B: Diffuse Systemic Sclerosis, Type 1 Diabetes, Autoimmune Hepatitis, Lupus, Raynauds, Thyroid, etc. I am forty-seven as I write this, and I live in a remote village in southeast England. Although I feel very alone with my diagnosis…

Edith: MCTD with En Coup de Sabre/Parry Romberg's, Lichen Sclerosus, Rheumatoid Arthritis, Sjogren's My GP is fabulous, but at the end of the day it is not enough. I would be lost without people like you…

Elizabeth O: Linear Scleroderma I am afraid also because it goes through my left eye, which I see becoming smaller…

(Español/Spanish) Elizabeth O: Esclerodermia Lineal Me da temor porque pasa por mi ojo izquierdo, que cada día noto más pequeño…

Julie T: Surviving Daughter of a Diffuse Scleroderma Patient My mother, Carolyn Mauro, was sixty-five years old at the time of her diagnosis of scleroderma. Through her sixty-four years she was working full time…

Kath: Systemic Sclerosis (Scleroderma) I have suffered with Raynaud's for about thirty years. Thirteen years ago, it was discovered that I also had systemic sclerosis (scleroderma)…

Sherrill: Diffuse Systemic Scleroderma About 31 years ago, when we had only been married a short time, I was diagnosed with Meniere's Disease, which left me deaf in my right ear…

Tata P: Diffuse Scleroderma I am thirty-two years old, and I have been suffering this illness since I was nine…

(Español/Spanish) Tata P: Esclerodermia Difusa Hola, tengo 32 años, y padezco esta enfermedad desde los 9…

Dr. C. Stephen Foster: ISN Medical Advisory Board. Dr. Foster is Clinical Professor of Ophthalmology at Harvard Medical School and Director of the Ocular Immunology and Uveitis Foundation in Cambridge, MA USA. ISN.

Sjogren's Syndrome A systemic autoimmune disease that sometimes occurs in overlap with systemic sclerosis (scleroderma) and causes dryness of the eyes, mouth and skin. ISN.

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