Living with Pulmonary Fibrosis

Author: Shelley Ensz. Scleroderma is highly variable. See Types of Scleroderma. Read Disclaimer
Air Quality
Oxygen Therapy
Dangers of Oxygen
Support Groups

Overview of Living with Pulmonary Fibrosis

Living with Pulmonary Fibrosis requires a constant awareness of your symptoms, your breathing, your surroundings, and your overall well-being. Work closely with your doctors on treatments, diet and exercise. If you require oxygen therapy, use it. It protects your heart as well as improves the quality of your life. ISN.

Living With Idiopathic Pulmonary Fibrosis. National Heart Blood and Lung Institute.

Living With Lung Disease. The American Lung Association's Living With Lung Disease Wall of Lung Champions is dedicated to people who live each day with lung disease. American Lung Association.


Exercises for People With Pulmonary Fibrosis. Certain lifestyle changes, such as exercising, can help to increase your quality of life, improve the functioning of your lungs and reduce your overall stress levels. As exercise also can make you feel short of breath, consult your doctor prior to beginning any type of exercise program to make sure the specific exercises are appropriate for your condition. LiveStrong.

Lung Exercises for Pulmonary Fibrosis. Breathing exercises can help you breathe better during any kind of activity, which will help as begin or continue an exercise program. LiveStrong.

Air Quality

If you smoke, QUIT. Avoid being around people who do smoke. Do not go to places where people do smoke.

Indoor Air Pollution Fact Sheet. American Lung Association.

Air Quality in the Home. American Lung Association.

Air Quality in the Workplace. American Lung Association.

Oxygen Therapy

Treatment for Interstitial Lung Disease: Oxygen Therapy. Improving the level of oxygen in the blood through the use of supplemental oxygen can help relieve the strain on the heart and lungs and improve symptoms of shortness of breath and fatigue. National Jewish Health.

Dangers of Oxygen and Flame

Oxygen Concentrator and Oxygen Therapy Safety. Stay at least 5 feet away from heat or open flames while you are using your oxygen, that includes people who are smoking or using a gas operated stove. Oxygen Concentrator Store.

Support Groups

American Lung Association.

Pulmonary Fibrosis Foundation. The Pulmonary Fibrosis Foundation is the primary organization dedicated to finding a cure for and raising awareness of Pulmonary Fibrosis, an often fatal lung disease. The Foundation is also devoted to improving the quality of life for those afflicted with this illness. Pulmonary Fibrosis Foundation.

Go to Pumonary Fibrosis Research

United Way of Central New Mexico
United Way of Snohomish County
See ISN News for recent donors, including Juliet Youkhana; and donations in loving memory of Jim Miller and Arlene Marie Petulla.
Click Here to Donate or Shop
or click on the floating green DONATE button.


TOLL FREE HOTLINE, U.S. and Canada: 1-800-564-7099
Ask for our Free Info Packet by email or postal mail!

SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected] to request our Welcome email, or to report bad links or to update this page content. Privacy Policy.

The most important thing in the world to know about scleroderma is!

Donate Now
Copyright 1998-2017, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.