It is very important to consult a scleroderma expert for the proper diagnosis and treatment of scleroderma, because it is a rare disease. Treatments are available for most forms of localized scleroderma, but they are better at preventing progression than healing any damage that has already occurred. (Also see What is Scleroderma?, Types of Scleroderma, Linear Scleroderma Treatments, and Scleroderma Experts)
Scleroderma Experts: US and worldwide listings. Only some of the expert centers treat children. Please call the scleroderma treatment center(s) you are interested in for more information. ISN.
Italy: International Pediatric Center for Juvenile Scleroderma (both localized and systemic.) ISN.
United Kingdom survey of current management of juvenile localized scleroderma. How monitoring tools are accessed, used and perceived by paediatric rheumatologists and dermatologists in the UK varies between and within clinician groups, as do treatment prescribing patterns and transition arrangements. PubMed, Rheumatology (Oxford).
New Jersey: Dr. L. Nandini Moorthy, Assistant Professor of Pediatrics at Rutgers Robert Wood Johnson Medical School. Featured expert on Juvenile Scleroderma in the ISN's book, Voices of Scleroderma Volume 2. ISN.
New York: Dr. Thomas Lehman, Chief of the Division of Pediatric Rheumatology at the Hospital for Special Surgery, Professor of Clinical Pediatrics at Cornell University Medical Center. Featured expert on Juvenile Scleroderma in the ISN's book, Voices of Scleroderma Volume 1 . ISN.
SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.